Started in 2016 | Ongoing
Sickle Cell Disease (SCD) is a genetic blood disorder that affects thousands of people in India, particularly in tribal belts like Dahod, Chhota Udepur, Narmada, and parts of South Gujarat. Many families in these regions live in poverty, with little access to specialized healthcare. Left untreated, SCD causes severe anemia, painful crises, organ damage, and even premature deaths.
At Shivam Charitable Trust, we took up the mission in 2016 to provide free testing, treatment, and counseling for Sickle Cell Disease patients in these underserved communities.
What We Do
- Screening Camps: Early detection of carriers and patients through blood tests.
- Free Medicines & Supplements: Providing folic acid, pain management drugs, and nutritional support.
- Medical Consultations: Partnering with hematologists and local doctors for continuous care.
- Awareness Programs: Educating families about genetic transmission and preventive steps.
- Support for Pregnant Women: Special monitoring and treatment for expectant mothers with SCD.
Impact in Numbers (2016–2025)
- 12,000+ people screened across Dahod and nearby tribal areas.
- 3,000+ patients identified with Sickle Cell Disease.
- 1,800+ patients receiving free long-term treatment & follow-ups.
- 2,500+ awareness sessions conducted in schools and villages.
- 100+ doctors, nurses, and volunteers working with us on the ground.
Real Impact – Real Stories
In 2021, we met a tribal boy named Raju (age 10) from Dahod who was unable to attend school due to frequent painful crises. After being diagnosed at one of our camps, he was enrolled in free treatment and nutritional support. Today, Raju is back in school, smiling and studying like any other child. His mother said: “Aap logon ne sirf mere bete ki jaan nahi bachayi, balki uska bachpan bhi wapas lauta diya.” (“You didn’t just save my son’s life, you gave him back his childhood.”)
Why This Matters
- Early detection saves lives.
- Treatment reduces pain and prevents complications.
- Awareness stops the cycle of transmission across generations.
Partnerships & Growth
Future Goals (2025–2030)
- Expand screenings to 50,000+ people in tribal belts.
- Provide lifetime treatment access to all registered patients.
- Set up a dedicated Sickle Cell Care Center in Dahod.
- Collaborate with genetic research institutes to promote carrier awareness and prevention.